Last photo of teenager banned from seeing his family before he died on the day Boris Johnson partied

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Ruby Fuller, 18, died on May 15, 2020, the same day the Prime Minister was pictured in the garden of 10 Downing Street eating cheese and wine with his wife and colleagues.

The last photo the family has of Ruby, a week before she died

A family has shared the last photo of their teenage daughter who died on the same day Boris Johnson partied in Downing Street.

Blood cancer patient Ruby Fuller, 18, spent her final days separated from friends and family because she was determined to ‘do the right thing’ and obey Covid rules .

She spent her last precious moments with her parents and younger sister as they tried to give her “the best end to life possible”.

A week before Ruby’s tragic death, her parents took their last photo of her – pictured in a hot tub with her father outside the family home.

Relatives were prevented from joining them and she had to say goodbye on Zoom.

The teenager died on May 15 – the same day the Prime Minister was pictured in a Downing Street garden enjoying cheese and wine with his wife and colleagues.







Ruby was determined to stick to the lockdown rules until the very end
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Picture:

Emma Jones)








Ruby spent her last weeks with her parents Emma and Dylan and her younger sister Tabitha
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Picture:

Emma Jones)


Speaking to The Mirror after the Prime Minister was fined £50 for attending another birthday party breaking the rules, Ruby’s devastated mother Emma Jones said her daughter would have been “angry” at the behavior of the Prime Minister.

Emma, ​​52, an environmental consultant, said: “While Boris and Rishi partied, we tried to give Ruby the best end to life possible.

“A hot tub and an inflatable flamingo was all we could handle. No friends or grandparents or cousins. Not even for 10 minutes. She had to say goodbye on Zoom. We deserve better. “

Ruby was 17 when she was diagnosed with non-Hodgkin’s lymphoblastic T-cell lymphoma, which turned into leukaemia.

“Until three weeks before Ruby died, we thought she was going to get better,” Emma said.







Ruby, pictured at a past protest, would have been ‘crazy’ that Boris Johnson broke the rules, her mother says
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Picture:

Emma Jones)


Ruby spent her last weeks with her parents Emma and Dylan and her younger sister Tabitha, now 15, in a bubble at their home in Crystal Palace, south London.

They played board games, watched movies, had ice cream delivered, a friend lent them a hot tub, and Ruby’s godmother sent them an inflatable flamingo — and they managed to make memories specials.

“Ruby would be on Zoom calls with her friends and family,” Emma said. “We had a Zoom quiz with my family the day before Ruby died.”

Speaking about the lockdown, Emma said: “It was just the four of us. It was really tough – and it was really tough afterwards.

“It’s such a devastating thing to watch your child die, and then you find yourself alone with each other, paralyzed with grief, and you can’t even open your doors and let people pour in with their love.







Her mum Emma has spoken out because she says her daughter would be angry at the Prime Minister’s behavior
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Picture:

Emma Jones)








Ruby was determined to play by the rules
(

Picture:

Emma Jones)


“It was always going to be the most desperately sad and difficult time, but the rules made it harder.

“But at the time, we didn’t regret it. We were living in a pandemic and we were doing what everyone had to do – there were no exceptions.

“So when it came out that the people making the rules weren’t with us, it became very insulting.

“It’s not even rules – it’s the law. It [ Boris Johnson ] demonstrated that he had no moral compass.

“It’s so frustrating that we didn’t seem to have a choice.”

Emma said Ruby would have loved to have her friends, grandparents and cousins ​​with her at the end – but she refused to put anyone in danger.







Ruby spent a lot of time on Zoom calls with her friends and family
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Picture:

Emma Jones)


“We asked if we were going to ask them to come even though it was against the rules, but she felt like she didn’t want to put other people at risk,” Emma said.

“She had always followed the rules and was very committed to doing the right thing.”

Unfortunately, the family has still not been able to arrange a proper funeral after Ruby’s passing.

They set up a bench in their garden where people could come – one at a time – to write memories and share photos while Emma and the family talked to them from an upstairs window.







Ruby was 17 when she was diagnosed with non-Hodgkin lymphoblastic T-cell lymphoma in 2019, which turned into leukemia
(

Picture:

Emma Jones)


Despite everything that’s happened, Emma says she’s still glad they played by the rules because if someone had caught Covid visiting them ‘it would have made something so sad so much worse’.

“When you’re caring for someone at the end of life, what they want is paramount,” Emma said.

“I don’t regret at all what we did. People would have been put in danger. I just regret that we didn’t have a leader who could lead by example.

“Ruby would be so mad at Boris Johnson’s behavior so I do [speaking out] for her.







Ruby asked to be remembered for the motto ‘live sweet, live hard,’ says her mother
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Picture:

Emma Jones)


“She would like people to know the sacrifices she, her family and friends have made and how utterly insulting the Prime Minister’s behavior is.”

Ruby asked to be remembered for the motto “live sweet, live hard,” her mother says.

The family are trying to raise half a million pounds to fund research into T-cell blood cancers.

Ruby’s “Live Kindly, Live Loudly” fund is a CCLG special fund that raises money for T-cell lymphoma and leukemia research in memory of 18-year-old Ruby Fuller. Make a donation, Click here.

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